Blown Wide Open

 

“Tomorrow we die, today we love.

We are living in some precarious times, I can barely turn on the news as the anguish and ambiguity of it all serves only to compound my grief and fear. I am trying desperately to navigate my way around what feels like a whole new world, a world without the love of my life and somehow that feels like enough right now. My world, along with the rest of the world seems to be blown wide open.

Back in May I attended a Workshop at Wellness on Whyte and one of the facilitators; Dr. Geha used a quote that had a profound affect on me, and though I have mentioned it here before it certainly strikes a much more familiar chord with me now. She said “Tomorrow we die, today we love.” She later told me that to her it sums up our human purpose in one broad stroke.

We are here to love.

I read that quote earlier today and I was thinking about that workshop and what a powerful experience it was for me. I had been struggling with my teenage daughter for quite awhile, as she unknowingly struggled with the affects of untreated ADHD and I had been fighting with the demons of my husbands depression for several years all the while trying to accept that I was enough and that I was worthy of all the love and care that I was giving to everyone else, that I deserved saving too. In January of 2016 I finally decided that my health and wellness was important; if I was going to continue to be strong for my family when they needed me. You never know what lies ahead of you, the best we can do is learn from the things that are behind us. When we have moved through and processed the pain, we need to let go and keep the lesson.

I have been trying to very hard not to spend a lot of time on “what if” but it is an impossible place not to visit periodically when you lose someone so tragically to suicide. I know that something drew me to that quote this morning, and I contemplated long and hard. People do not understand illnesses of the brain, and people that suffer them do a great deal of their suffering in silence. Lost in pain, sometimes those left behind sift through the wreckage eager to lay blame or find a reason.

I did know that my husband suffered, I did however not know that he was suffering that day and I certainly do not know how much he was keeping from me in the months leading up to that day, to avoid drawing me into his pain. These are things that I will never know. I do know this with certainty, I am not to blame. I loved him with all of my heart and when he was in pain and acting out of fear I loved him even more. I spent a great deal of time slaying demons and chasing away ghosts, just like you do when your children are small and terrified of things that lurk in the darkness.

The problem with Mental Illness though is that the ghosts that lay down with you at night also wake up with you in the morning, they are with you throughout the day and they shout at you internally. They are inside of you and it gets really tiring trying to remember that they are not really a part of you. Silencing them is a constant task. My husband tried excessive work, booze and even drugs to chase them away when their voices were loudest. Unfortunately the medicine he chose to shut them out eventually helped them to grow stronger.

Lost in disbelief, the survivors look for reasons and some, in moments of weakness and distress look for people to blame

My husband was not a large man physically, but he was a huge man in every other sense. He was a huge presence, he had a gigantic personality and he loved big. Sadly, these illnesses that we judge are so often misunderstood and are very complex, deteriorating the minds and the lives of our loved ones almost invisibly. Lost in disbelief the survivors look for reasons and some, in moments of weakness and distress look for people to blame. Kirk and I talked about the illness a lot but during the worst of times his initial defense was to try to shut me out. He didn’t necessarily want to suffer alone but it broke his heart to have me suffer along with him. That weighed very heavily on him. I thought I understood the illness quite well, but I could only understand from my level of perception, the illness didn’t inhabit my body and mind and scream at me from the inside out.

Love is really all that I am qualified to give

This week I have been offered some amazing and unexpected kindnesses, and every time someone reaches out to me and embraces me in love and understanding it gives me a moment of lightness. The other thing that I have been offered which has been a blessing wrapped in a helpless ache is many glimpses into the minds of people that suffer deep depression. It has been a blessing because people are willing to open up and share their experiences and help separate myth from reality and tell their stories about how the illness feels from the inside out. They do this out of a want to end the stigma and to ease my heart and stop that endless train that powers through my head asking me if I could have done more.  I say helpless ache because there is little I can offer to ease their pain, I can offer gratitude that they want to help me by sharing their authentic stories of deep pain and suffering, and love because I do love them and love is really all I am qualified to give.

Kirk didn’t rebuff his life or all of the great things in it; he didn’t choose to leave behind his children, his wife or his family and friends. Depression stole his joy and in desperate times it withered all of those great things he had and made them smaller than the sickness. He died from an illness. Some people have expressed anger and tried to assign blame to people, places or things. That has not been a part of my journey so far, I have felt anger but not anger towards him. When my Dad died of a heart attack, I wasn’t mad at my father. I was mad at the illness that took him so young.

He really implored me to not be so judgmental, I was guilty of seeing people and situations through a small crack in the blinds and he inspired me to open the blinds, throw back the curtains and look for the big picture, offering love before judgement

Kirk was an amazing husband, father, son, brother and friend. He was a strong and conscientious worker and he was unbelievably smart and caring. He had wonderful things in his present and great things on the horizon. He would often tell me that I taught him and showed him so many things about love and friendship and respect but he did the same things for me. He lifted me up when I was down and took my hand and led me into adventures and taught me how to be spontaneous and to have a good time. He really implored me to not be so judgmental, I was guilty of seeing people and situations through a small crack in the blinds and he inspired me to open the blinds, throw back the curtains and look for the big picture, offering love before judgement.

He was loved and he loved, but his health was compromised. The disease became larger than him. He didn’t die because he was selfish or weak or hardhearted. He was sick and he died of an illness.

Nobody can tell a person how to grieve or how they should feel or give them a step by step manual and tell them what stage of grief they should be at. Grief is a personal journey. There are several things that I am relying on to guide me through this time of deep sadness.

  1. Hope

Hope is a huge. Hope is optimistic. Hope is the light at the end of a long dark tunnel. Hope is a trust in the process and the belief that better days are on the horizon. A glimpse of hope during difficult times is the promise that there is a light that resides on the other side of darkness.

2.

 Acceptance

The willingness to lean into uncertainty and accept what is. To reasonably accept that you do not know what is coming next. To recognize that it is OK not to be OK all of the time and to put your faith in the Journey. To accept challenges as they come and rise to meet them and be open to the changes and the development of character that comes with facing uncertainty and fear.

3.

Connection

As humans we are hard wired for connection but I have found that in the last several months the political climate in the world has divided us into smaller groups and created an us vs. them mentality. I have always been very led by energy so I try to limit my exposure to large groups of people and prefer a small friendly tribe. Sometimes a large part of my interactions are online but I try very hard to remind myself of the importance of human connection and of gathering the right people in my sphere of influence.

4.

Purpose

Why are we here on this earth and why does it matter? I have believed for quite some time now that our fundamental purpose is to love. Love is not a luxury, love is a necessity, not just personally, humanity requires love. I saw a video recently where a little boy talks about why humans are on the earth longer than dogs and the little boy explained that humans are put on the earth to learn to live a good life and love and be kind to people. He went on to say that dogs already know all of that so they do not need to stay as long. That really touched me, especially since most days I would like to replace a great deal of the humans in the world with dogs. That being said, it is unrealistic to think that we can or should love everyone but I think we need to start by loving ourselves, loving our lives and loving the earth. When everything we do is rooted in love I think our potential for growth is unparalleled.

Marrianne Williamson said something that really spoke to me. “One of the most tragic ironies of human existence is that we conspire in the belief, most often unexamined, that violence is more powerful than love. We spend hundreds of billions of dollars on ways to kill each other, but a tiny fraction of that amount on ways to help each other….as though it isn’t masses of desperate, hopeless people who are the main recruits to the collective pathologies that threaten us. This one awakening, harnessed and turned into political force, would completely change the direction of human history.”

I choose love as my purpose right now; I believe that it will successfully guide my children and I into the future. I could be jaded in the face of profound sorrow but I would not take back a second of the love Kirk and I shared to ease one second of my sadness. In the words of the late Henry David Thoreau:

“There is no remedy for love, but to love more”

 

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